Dine/Dance/Donate Event Huge Success!

Submitted to Facebook by Amy on March 21, 2017

One Step Closer to Being a Donor

Posted by Amy on Facebook 3/6/2017

Recent Lab Results


Originally posted by Amy on Facebook 3/2/2017

Big Life Changes, Brave Girl

Being a 13-year-old girl is a challenge already (at least that is how I remember it), but having your world suddenly turned upside down by a life threatening illness, certainly makes it even more so. Here is Kaylin giving herself a shot of Erythropoietin (EPO) which is a hormone that prevents anemia (low blood count) by helping make red blood cells. Anemia causes fatigue and low energy levels. It occurs when there are not enough red blood cells to carry oxygen from the lungs to supply all the body's needs. It took Kaylin about 6 months to be able to give herself the shots, but she does it like a pro in this video. 

And the Cross Match Results with Dad (Corey) are in...

Originally posted by Amy on Facebook 2/8/2017

The University of Washington Medicine called with some GREAT news! Corey's cross match results are back. He is a blood type match (he is O+, Kaylin is B+) and a 3:6 antigen match. The doctors say that's good. So, the next step is a 24-hour urine collection and another vial of blood for Corey. Kaylin will be happy to be off the hook for those tests for once, lol!

Kaylin's Diagnosis

Many people ask how this started or how we realized something was wrong. Kaylin was a seemingly healthy 13-year-old. About a year ago, we started to notice that she was drinking more fluids. She was drinking her drink, my drink, his drink, lol. She would get up in the morning and sometimes in the middle of the night and chug water. One night she came into our room in a panic because her hand was in a cramp. It stayed cramped up like a claw for 45 minutes to an hour and we just tried to rationalize it and calm her down. She was a child that NEVER would vomit, but started to get the dry heaves in the morning....almost like an esophageal spasm (she still has this quite a bit).

This Cowgirl is Tough Logos

A big thank you to Martha De Los Reyes for designing a couple of cool logos to use in our fundraising efforts!

A Hot-Air Balloon Full of Hope



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